I was diagnosed with Multiple Myeloma and Light Chain Deposition Disease in May 2012. After a few months of taking Thalidomide, Dex and Velcade, I had a “Bone Marrow Transplant” (Also called a ASCT – Auto Stem Cell Transplant) in November 2012. With Light Chain Deposition Disease the cancerous blood cells produce light chains which deposit in and scar my kidneys. When I was diagnosed, my kidneys had 75% scar tissue and my beta 2 microglobulins were 8.5 (over 5.5 is considered stage 3, the worst stage, according to the International Staging System).
When I was going into the hospital for my “bone marrow transplant”, I asked my transplant coordinator how much time this transplant would give me. She said probably 2-5 years. After my ASCT my “cancer markers” immediately started up and my oncologist put me on 5-10 mg Revlamid every other day.
16 months after my ASCT, I felt like my “2-5 years” were flying by and my sister found a book called, “Radical Remission” which said cutting out sugar was important. I asked my oncologist whether avoiding sugar would slow my cancer, he said, “Yes, but it is not just important to avoid eating sugar, it is important to maintain low, steady blood sugar – keep glucose level low and avoid insulin spikes. Find a good diabetic diet and follow it”.
I thank The Lord for my Oncologist giving me that clue, and that the first book I read was called “Diabetic Diet” by Dr Bernstein. This is a summary of what I learned over the last few years:
Otto Warburg (born 1883), a friend of Albert Einstein, discovered that cancer cells generate too much lactic acid… cancer cells use fermentation for energy (which is not normal). Warburg believed that cancer must be caused by injury to the cells’ metabolism.
Pedersen (born 1939) was born during time of powerful microscopes and did research on Warburg’s theory. He found that the worst cancer cells had the most problems with their mitochondria. Cancer cells had mitochondria that were small, shaped wrong or too few. These damaged mitochondria cause a cancer cell to turn to fermentation for energy – and lactic acid builds up. Warburg’s defective “metabolism” was defective mitochondria.
Pedersen also helped develop PET scans which use “labeled glucose”. Glucose concentrates in cancer cells, because cancer cells hoard glucose – having 17x as many glucose receptors as normal cells.
Thomas Seyfried wrote “Cancer as a Metabolic Disease” in 2012. He studied the research of Warburg and Pedersen, and found that transferring a nucleus from cancerous cell to healthy cell did not produce a cancerous cell – but when he transferred the cytoplasm (with defective mitochondria) into a healthy cell it produced a cancerous cell!
Seyfried noticed calorie restriction shrank tumors, and found that restricting carbohydrates also shrank tumors. The body produces ketones when carbohydrates are restricted. Ketones can be used by healthy cells for energy but cannot be used by cancer cells. He studies and recommended a ketogenic diet for cancer patients
When I started this, I thought I might only have a couple of years left but decided I would do everything I could to build my health, even if it was not easy – I started this in March 2014 and am much healthier than when I started! I am writing this to encourage others with cancer to try some of these ideas:
- I eat nothing between dinner and noon the next day – a 16 hour fast 5 days per week. Weekends I have a couple of eggs and ham or bacon or almond flour pancakes for breakfast.
- I try to eat just 12 net carbs per day (subtract fiber carbs)
- Have just 4 oz meat per day – 2 oz at lunch and 2 oz at dinner
- Healthy fats- olive oil, coconut oil, butter from grass fed cows etc.
- Take blood glucose 3x per day – before breakfast, 2 hours after lunch, 2-3 hours after dinner. I also test the blood on a ketone test strip at night. And, I jot that down on my calendar
- Eat a lot of vegetables of all types – in fact, I make a smoothie 5 days per week with full fat coconut oil, lots of vegetables, fresh ground flax seed, ½ avocado, fermented cod liver oil, monk fruit for sweetener. I take it to work and have with lunch.
- I avoid MSG and other sources of free glutamates
- Sip baking soda in water between meals. (this causes the blood to be less acidic – cancer produces lactic acid which makes your blood acidic. )
- For osteoporosis and weak bones, I do 10 min of squats etc on whole body vibration plate 5 days per week
- I take AHCC. Beta glucan, MGN-3 & a mixture of mushroom extracts called Immune Support with lunch and I take 4.5 g curcumin with 400mg EGCG in the afternoon.
This site includes recipes, exercises, links to studies and encouragement. It is intended to be read by cancer patients who are trying to do what they can to work with their oncologist. I am not a doctor and nothing I say should encourage you to go against your oncologist. You need to have blood tests regularly and follow your doctors orders. But diet and exercise can accompany and enhance most treatments.
I hope Jesus will bless your efforts and walk with you through this challenge. Cancer has changed me for the better – I am closer to the Lord and there is much more there is to life when I focus on the eternal picture. I have peace knowing that we are all travelers passing through this world – this is not my final home, and I feel Jesus has guided and directed my research, and given me the grace to be able to follow this diet for over 3 years – I have not had a single potato chip or lick of frosting, which sounds hard, but once this is a habit, it isn’t hard.